Thursday 30 April 2020

Vocational Training for Children with Different Needs – How and When to Start?


It was good eyewash to attend yesterday’s webinar organized by Nayi Disha and presented by Dr. Nina Vaidya, a very apt person for the job! Dr. Vaidya is pediatrician from Navsari(Gujarat) and mom of a special 27 yrs daughter, Palak who she has successfully trained to work in clinical environment !!!

Of course it is difficult journey for a parent to accept his/her child in first few years after the diagnosis. However the real battle begins on how we approach this question of at least partially main-streaming the child with society through various means including meaningful vocational activity. Every parent would unanimously agree on the benefits of vocational training during teenage years. However, Dr. Vaidya pointed the pre-vocational skills is an important area where lot of special parents fall short of.  

Dr. Vaidya shared a comprehensive check-list or pre-vocational skills that every special parent has to pay attention. It includes various aspects of how independent our child is to face the uncertain and maneuver through the dynamic world at large. Some of the key points are – 

  • Child’s understanding of private vs public and acceptable vs un-acceptable behavioral norms in society at large

  • Ability to comprehend time, modes of measurements and directions, maps & traffic signals.

  • Understand importance of money, safety of money and some sense of daily requirements in terms of expenses. 

  • Appropriate communication skills to handle situations in workplace and social circles. 

  • How to seek help at the time of crisis and to some extent develop understanding about situations that jeopardize personal safety

  • Learn to adapt own behavior with the requirements at workplace and also some sense of flexibility and prioritizing in given environment. 

Dr. Vaidya had given one example of her daughter, Palak when she started to work at her clinic between 9 am to 1 pm. Generally, special children tend to be very methodic and tend to be bound to their routines meticulously. As Palak was working as assistant at front desk and cash collections, she would leave exactly at 1 pm regardless of patients waiting at the clinic. Later on Dr. Vaidya had to train her for few weeks for her to understand and develop flexibility. This is a very simple example; but gives a sense of how every smaller aspect needs our attention and patience to work through. 

For developing required sense, vision and resolve she posed few questions that we as special parent need find our own answers and accordingly make a sustainable financial plan. 

  • Why do we want to impart vocational training to our child?

  • What portion of his/her expected expenses that child could earn on his/her own?

  • How to we plan to address the shortfall in the expense. In other words, do we have a financial plan in place? In a way, it is a better question to grapple with instead of worrying about “what happens after us?”

For a special parent all this seems rather daunting. Obviously there are lot of merits to train our kids vocationally whether keeping them involved meaningfully or improving their self esteem & confidence.   But the point is it’s a very gradual process; so we have to commit to it from the get-go. Obviously first 8-10 years would be spent mainly to get the child settled in age and IQ-appropriate educational set up. However as Stephen Covey, the famous author of “7 Habits of Highly Successful People” suggests, one needs to begin with the end in mind. So it would be ideal if parents could devote themselves to develop pre-vocational skills in child as early as 9-10 years of age. We have to involve our kids in various day to day activities, give them lot of exposure to various situations and slowly but surely nurture them to become responsible individual regardless of the types of job skills they could delve into. 

Finally, lot of parents fret about choosing right vocation. Children with developmental disabilities tend to do well with manual and repetitive tasks which require hands-on activities. There could be many potential vocations that would serve well whether it is in hotels, food industry, house-keeping / cleaning industry and so on. One of the key personality traits these individuals exhibit is they like to work diligently with lot of instructions without getting impatient. This makes them suitable to work as assistant or helper in any hands-on activity!

Personally I have visited a factory in Pune area where the owner, Mr. Subhash Chuttar has trained more than 50 special individuals to work in the factory as machine operators and they are working full time making automobile parts for MNC companies like Bosch and that too with zero rejection (Zero PPM). Unbelievable, right!!! All credit goes to Mr. Chuttar and his patience to work through all the hurdles in training them which takes rather long time. He gleams with smile and adds “Once trained, these guys are most dependable and will never put you down”  

One of the very well known special educators in Pune, Mrs. Sunita Lele once pointed out to me that special parents often talk about their right to have work opportunities for special children; but is it NOT our responsibility to make our kids more employable first. We were talking about Lemon Tree hotel in Mumbai employing special adults for house-keeping work. 

Along the same line, Dr. Vaidya suggested that it is ok to keep searching for the vocation our child would enjoy and be interested in. But we should always try to balance out with availability and safety in addition to more practical aspects such as remuneration, distance and working hours. She added, “It’s even more important to create correct mindset and attitude of children so that they become employable and productive citizens of tomorrow no matter how miniscule their contributions seems!!!”

-- Sachin Jakhotia / Bavdhan, Pune

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I would love to hear your comments and suggestions. Please contact on 8308879900 / shlok.ability@gmail.com

Wednesday 15 April 2020

A Musical Journey to Acceptance of a Special Child !!!

Just around “Down’s Syndrome Day” last month, I had penned an article about acceptance of a special child. Now that we are in the middle of a nation-wide lock down for last 3 weeks, there is lot of anxiety and restlessness in society at large. When things are rather somber, music and humor or for that matter any form of art could provide us with much needed fresh air and positivity.  With that context, I just thought of compiling a play-list of song that could give a good sense of up and downs that a parent goes through while raising a special child!!!

For any parent it is most devastating while receiving the news about child’s diagnosis and lot of pain strangles our mind with why me? Or why us ? questions. In those days, the songs that I listened most frequently was a song by Jagjit Singh and the lyrics were so close to my heart that later on I listened lot of songs by the lyricist, Nida Fazli 

Jeevan kya hai....
Chalta phirta ek khilona hai
Do aankhon me ek se hasna ek se rona hai

Jo jee chahe woh mil jaaye kab aisa hota hai
Har jeevan jeevan jeene ka samjhouta hota hai

In those early days of shock and denial, lot of sad songs of Kishor Da or Rafi sahib automatically got added to my playlist  

  • Yeh Jeevan Hai Is Jeevan Ka Yehi Hai - Yehi Hai Yehi Hai Rungroop Thode Ghum Hain Thodi Khushiyan Yehi Hai Yehi Hai Yehi Hai Chaon Dhoop

  • Zindgi Kaisi Hai Paheli Haye, Kabhi Toh Hasaye, Kabhi Yeh Rulaye

  • Zindagi ka safar, hai ye kaisa safar… Koi samajha nahin, koi jaana nahin… Hai ye kaisi dagar, chalate hain sab magar …Koi samajha nahin, Koi jaana nahin

  • Raahi manava dukh ki chinta kyon sataati hai dukh to apana saathi hai

  • Kabhi Khud Pe Kabhi Haalaat Pe Rona Aaya

Unless parents reach an acceptance at deeper level of mind, there is no escape from the spiral of negative emotional. This entire process is not linear and not everyone goes through every stage. At this stage, parents start subscribing to both positive and negative emotions and songs too –

  • Chalte Chalte Mere Yeh Geet Yad Rakhna..Kabhi Alvida na kehna

  • Aanewala pal, jaanewala hai

  • Ruk jaana nahin tu kahin haar ke …Kaanton pe chal ke, milenge saaye bahaar ke…. O raahi, o raahi

  • Git gaata hun main, gunagunaata hun main Maine hasane ka waada kiya tha kabhi Isalie ab sada muskuraata hun main

  • Zindagi Ki Yehi Reet Hai Har K Baad Hi Jeet Hai ..  Thode Aansu Hain Thodi Hansi Aaj Gam Hai To Kal Hai Kushi


One of the new age songs at this point was – 

  • Har ghadi badal rahi hai rup zindagi Chhaanw hai kabhi, kabhi hai dhup zindagi Har pal yahaan ji bhar jiyo Jo hai samaan, kal ho na ho

Finally, when acceptance sinks in, parents are ready to accept the new reality, even though it's not the one they wanted. At this point, emotion remains positive for most part. 

  • Thoda hai thode kee jarurat hai …Jindagee phir bhee yaha khubsurat hai

  • Main Zindagi Ka Saath Nibhata Chala Gaya …Har Fikar Ko Dhuen Mein Udata Chala Gaya

  • Kitne bhi tu kar le sitam, has haske sahenge hum…Yeh pyaar na hoga kam,  Sanam teri kasam

And my most favorite these days has been – 

Aashiyana Mera, Saath Tere Hai Na, Dhundte Teri Gali, Mujhko Ghar Mila

Aabodaana Mera, Haath Tere Hai Na, Dhundte Tera Khuda, Mujhko Rab Mila…

Tu Jo Mila, Lo Ho Gaya Main Kaabil, Tu Jo Mila, Toh Ho Gaya Sab Haasil

Mushkil Sahi, Aasan Hui Manzil, Kyunki Tu Dhadkan …Main Dil…

I am sure when the child grows up, he/she will have own sets of experiences and emotions, the song that will come back and we better be prepared to 

Main Aisa Kyun Hoon ..Main Aisa Kyun Hoon …Main Jaisa Hoon Main Waisa Kyun Hoon

Karna Hai Kya Mujhko Ye Maine Kab Hai Jaana..

Finally, raising a special child is life-long journey and one has to keep things in context. For that matter, I would end this article with one of my most favorite peom from “ Zindgi na Milegee Dobara” – 

Jab jab dard ka badal chaya,  Jab gham ka saya lehraya,

 Jab aasu palko taq aaya,  Jab yeh tanha dil ghabraya,

 Humne dil ko ye samzaya dil aakhir tu kyu rota hai,

 Duniya me yu hi hota hai.

 Yeh jo dard k sannate hai, wakht ne sabko hi bate hai,

 Thoda gham hai sabka kissa,  Thodi dhup hai sab ka hissa,

 Aankh teri bekar hi nam hai,  Har pal ek naya mausam hai,

 Kyu tu aaise pal khota hai,  Dil aakhir tu kyu rota hai. 

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I would love to hear your comments and suggestions. Please contact on 8308879900 / shlok.ability@gmail.com

P.S. I have created playlist of above songs on Gaana.com. Feel free to listen to this playlist. 

https://gaana.com/playlist/sachinjakhotia-amusicaljourneyofraisingspecialchild-k3yjyvn5wr


Wednesday 1 April 2020

Making the best of ISOLATION during CORONA outbreak!!!

Lately Corona (Covid-19) virus has wrecked havoc on entire world affecting more than 2 billion people. No wonder social distancing has become new NORM and like never before, ISOLATION is providing unique opportunity to interact closely within family to bring about different perspective towards life.

As anyone dealing with stock markets could relate with the wide-spread retracement in stock prices and experts are suggesting reviewing and rebalancing investments. Along the same lines, perhaps this is the time to take stock of abilities and behavioral peculiarities of our kids on one hand and looking critically to our own temperaments and biases on the other. For that matter long-term investing could very well be a good analogy to raising kids so as to bet on tomorrow’s winners!!!  

During a recent program at Phoenix school, Dr. Suneel Godbole had made interesting comment that children with sub-par mental abilities tend to do well with the activities requiring touch, smell and taste senses as compared to white-collar jobs which require extensive use of visual and auditory skills. We all know that our kids require multi-modal teaching/training techniques. For Shlok, we observed he likes to do hands-on activities such as helping in kitchen, home chores, serving at dinner table etc. So his dominant learning mode seems to be kinesthetic.

In line with that we are encouraging him to play mechanic set wherein he can make various car models with nut-bolts, screw-driver and spanners. In general, I observed ebbing of interest after few weeks whether it is dance, music or even sports class. So far Shlok has always responded with enthusiasm for mechanics of the mechanical objects. So surely this would be one focus area to work with him in long term. Other aspect, we need to be conscious of is what is age-appropriate attention span. For Shlok, we observed he responds well when we do any specific activity for 10-15 minutes. We believe every 6-12 months we can slowly extend his attention span by few minutes…

To be able to work independently in outside world one has to attune to social expectations at large. So behavioral peculiarities is another prominent area to pay attention. I am calling it peculiarities because often it seems to be attention-seeking misbehavior on Shlok’s part. Shlok exhibit multiple of such behaviors – Spitting when angry, mischief with friends/siblings/cousines or even sometimes sneaking away in crowded public places within a blink of eye.  Just yesterday he sneaked away in our neighborhood while we have been searching for him all over. After 8-10 minutes I got call from a gentleman couple of lanes down informing that Shlok is with him. We felt relieved. But the point is we need to be vigilant and prepared for such situations. To my surprise Shlok had informed his name and also shown his locket to the stranger. Knowing Shlok, we always keep one plastic key-chain as locket with him (my mobile number and Shlok’s UID/Aadhar number written in there). When-ever we go in crowded places or weddings etc, we make him wear a watch with SIM card so either he calls us or we could reach him.

These kinds of instances are very difficult to keep calm as opposed to scolding him. I was able to keep a neutral temperament and after couple of hours when everything was settled, I praised Shlok for his good behavior of showing phone number to the stranger. Later in the day when he was happy and more receptive, I told him a social story on why he should not go out without informing. We are also trying him to memorize critical information as phone number, address etc. Of course, there is no alternate to being more vigilant in first place but we still need to have strategies in place as fall back option.

As per Indian culture a day is divided into eight praharas (of three hours each) or thirty muhurtas (of 48 minutes each). So while I am working from home, our focus is there should be at least 10-15 minutes of an activity every 3 hours so we remain in sync with the child. It is even better if we can use at least 2-3 instances every day to form a positive/healthy habit. With our kids forming any new habit is bit difficult. But if we persist long enough, we would be rewarded richly as the kids themselves remind us to do those activities. For example, I am teaching sun-salutations for last 10 days and I need to take extra efforts for him to follow. But for last couple of months, Shlok has been reciting Hanuman Chalisa in the evenings with his mother and chanting Om prior to going to bed. Now that he has gotten used to it, he only reminds us. Another fun activity Shlok likes to do on my laptop is drawing shapes and coloring in “paint”. He is now doing a lot of it independently.

As I always feel, we as parents are custodians of our children’s future. We gotta do whatever it takes to move forward an inch at a time!!!

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